Normal is no longer part of our existence. We have no desire for normal now because life without our son cannot be normal. We are OK not being normal - in fact I guess we never really were normal in the first place. The hardest part is looking at photos of our summer and trying to comprehend that it all came to an end so quickly. The long battle that we were preparing to enter ended before we were ready. I guess there is really no way to be ready but we sure spent a lot of energy preparing.
We are not planning to keep up the Blog although we will be adding a final entry once we have Will's monument in place. Then we will create a final entry that will include all of our photos and possibly even some video. I do not want to spoil the surprise but we have a ton of photos and video for our little guy's one day of life. He was such an inspiration to so many we feel it is only appropriate to share more with all of his fans.
Matt is back at work but I will not return to work until January. Since I had the opportunity to take off some extra time I took it and feel quite good about the decision. I am enjoying my time off and looking forward to a fresh start. I do not think I could stand to stay home full time but knowing that I am going back in January helps me not take this time for granted.
Again, we could never tell you how much we appreciate your thoughts and prayers. As always we have felt your support and love. There have been very few moments when we lost sight of the joy Will brought to our lives and even fewer moments that we forgot the gift that he was to our lives. Each day we have been overwhelmed with the letters and donations of family, friends and strangers. This has been such a blessing because it is a continuous reminder that Will was with us and that he made a impact on the world. Without it I think there would be times that it would feel like a dream rather than reality.
I am continuing to get support at church and through Breath of Hope. We are still in contact with Children's Hospital of Philadelphia and we are confident that soon we will know either how to better treat or prevent this disease all together.
Thank you all for standing with us during this most difficult time. Please contact us if there is ever anything we could do in some small way to provide support to your family.
heather.r.morgan@gmail.com
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9 comments:
I love your letter to your sweet Will. And you both are not alone - I thought for sure that Will would still be with us. I sometimes have more hope than I should so I try to distribute it.
I am amazed with you both - I know there will still be moments - that is okay. Our angels are blessings and love transends all - even death.
With my thoughts & prayers,
Elizabeth
PS - I can't wait to see the pictures and video...
Your words are inspirational to everyone. We will always be thinking of Will. I am amazed by your strength, courage, and elegant words to your son. You are in our thoughts and prayers.
Gina
Wyatt's Mom
Our hearts still ache over your loss. Your letter to Will is beautiful and you both are the best Mom & Dad! We are continuously amazed by your strength.
Keeping you in our prayers,
Brad & Kellie
What a beautiful post and letter to Will. I'm constantly amazed by your strength. I can't begin to imagine the great loss you feel, but please know I think of you often and remember Baby Will and his valiant fight always. He was indeed a special and very loved little boy and will be forever in all our hearts.
Many people say God doesn't give us more than we can handle. I doubt that. Instead I find comfort in the well known poem, "Footprints in the Sand."
-"My son, my precious child,
I love you and I would never leave you.
During your times of trial and suffering,
when you see only one set of footprints,
it was then that I carried you."-
http://www.llerrah.com/footprints.htm
I find great comfort in knowing that when God does give me more than I can handle, I can give it over to God and He will carry me. May God carry you through your darkest times and lift you up with His love.
Jen
Your letter to Will is beautiful. We were so touched by Will and will always remember him. You are in our thoughts and prayers.
Liz and Shane
Heather and Matt,
Your post is beautiful and so very meaningful, as is your letter of love to your son. You both are such an inspiration and so strong. What you've said is so true, that you can't really be normal after what you have been through. I am glad God has given you peace with that, although it must be that some days it doesn't feel like it. I'm glad you're taking some time off, Heather. That is so great and I'm glad you're taking care of yourself. Your family is in my prayers...we would love to have dinner with you sometime, I wish we lived closer! Want to come up for the Iditarod?? :) It's in March... ;)
Yours,
Megan, Nik, and baby John Michael in Alaska
Your letter to Will is lovly, I have tears in my eyes as I read it. Keeping you in my prayers.
Fer
Mom to Juan Pablo RCDH
I could'nt find your email so I hope you get this. Cassi and I are thinking of and praying for you today. I wish we (our angels) were linked in another way. Just know espically on this day we are thinking of and remembering the battles of angel Will and Elli. Our love and sympathy are still with you and your family.
Love, Brian Cassi and angel Elli
Happy Birthday Angel Will. You are never forgotten.
I hope you give mommy and daddy a sign that you are celebrating your special day in Heaven.
God Bless ALL the CDH babies/families.
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