tag:blogger.com,1999:blog-3345764855422839411.comments2010-08-19T15:57:28.323-04:00Baby William Ethan MorganHeatherhttp://www.blogger.com/profile/17525479802915058039noreply@blogger.comBlogger281125tag:blogger.com,1999:blog-3345764855422839411.post-79379699452867371262010-08-19T15:57:28.323-04:002010-08-19T15:57:28.323-04:00Happy Birthday Angel Will. You are never forgotte...Happy Birthday Angel Will. You are never forgotten.<br />I hope you give mommy and daddy a sign that you are celebrating your special day in Heaven.<br /><br />God Bless ALL the CDH babies/families.proudmomhttps://www.blogger.com/profile/06634086521176577388noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-71345435207798011222009-08-19T13:22:25.383-04:002009-08-19T13:22:25.383-04:00I could'nt find your email so I hope you get t...I could'nt find your email so I hope you get this. Cassi and I are thinking of and praying for you today. I wish we (our angels) were linked in another way. Just know espically on this day we are thinking of and remembering the battles of angel Will and Elli. Our love and sympathy are still with you and your family. <br /><br />Love, Brian Cassi and angel ElliBrian and Cassi Reedhttps://www.blogger.com/profile/03095618401843225235noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-35500591821506388752008-12-26T14:26:00.000-05:002008-12-26T14:26:00.000-05:00Your letter to Will is lovly, I have tears in my e...Your letter to Will is lovly, I have tears in my eyes as I read it. Keeping you in my prayers.<BR/><BR/>Fer<BR/>Mom to Juan Pablo RCDHFerhttps://www.blogger.com/profile/02399525219852871525noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-9135575778321007882008-11-22T02:52:00.000-05:002008-11-22T02:52:00.000-05:00Heather and Matt,Your post is beautiful and so ver...Heather and Matt,<BR/><BR/>Your post is beautiful and so very meaningful, as is your letter of love to your son. You both are such an inspiration and so strong. What you've said is so true, that you can't really be normal after what you have been through. I am glad God has given you peace with that, although it must be that some days it doesn't feel like it. I'm glad you're taking some time off, Heather. That is so great and I'm glad you're taking care of yourself. Your family is in my prayers...we would love to have dinner with you sometime, I wish we lived closer! Want to come up for the Iditarod?? :) It's in March... ;)<BR/><BR/>Yours,<BR/><BR/>Megan, Nik, and baby John Michael in AlaskaMegan Larsonhttps://www.blogger.com/profile/13394516038367090440noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-67295891283429905422008-11-21T12:03:00.000-05:002008-11-21T12:03:00.000-05:00Your letter to Will is beautiful. We were so touc...Your letter to Will is beautiful. We were so touched by Will and will always remember him. You are in our thoughts and prayers.<BR/><BR/>Liz and ShaneLiz and Shanehttps://www.blogger.com/profile/10259533868125774997noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-34603590597499766842008-11-18T00:15:00.000-05:002008-11-18T00:15:00.000-05:00What a beautiful post and letter to Will. I'm con...What a beautiful post and letter to Will. I'm constantly amazed by your strength. I can't begin to imagine the great loss you feel, but please know I think of you often and remember Baby Will and his valiant fight always. He was indeed a special and very loved little boy and will be forever in all our hearts. <BR/><BR/>Many people say God doesn't give us more than we can handle. I doubt that. Instead I find comfort in the well known poem, "Footprints in the Sand."<BR/><BR/>-"My son, my precious child,<BR/>I love you and I would never leave you.<BR/>During your times of trial and suffering, <BR/>when you see only one set of footprints,<BR/>it was then that I carried you."-<BR/><BR/>http://www.llerrah.com/footprints.htm<BR/><BR/>I find great comfort in knowing that when God does give me more than I can handle, I can give it over to God and He will carry me. May God carry you through your darkest times and lift you up with His love.<BR/><BR/>JenJenhttps://www.blogger.com/profile/01169013236451607972noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-91246923244067088492008-11-17T23:21:00.000-05:002008-11-17T23:21:00.000-05:00Our hearts still ache over your loss. Your letter...Our hearts still ache over your loss. Your letter to Will is beautiful and you both are the best Mom & Dad! We are continuously amazed by your strength.<BR/><BR/>Keeping you in our prayers,<BR/>Brad & Kellie*super dude and super dog*https://www.blogger.com/profile/00506572597464180765noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-73470692380799637762008-11-17T21:56:00.000-05:002008-11-17T21:56:00.000-05:00Your words are inspirational to everyone. We will...Your words are inspirational to everyone. We will always be thinking of Will. I am amazed by your strength, courage, and elegant words to your son. You are in our thoughts and prayers.<BR/><BR/>Gina<BR/>Wyatt's MomGinahttps://www.blogger.com/profile/13786147882900140854noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-91819955371136898252008-11-17T21:16:00.000-05:002008-11-17T21:16:00.000-05:00I love your letter to your sweet Will. And you bo...I love your letter to your sweet Will. And you both are not alone - I thought for sure that Will would still be with us. I sometimes have more hope than I should so I try to distribute it.<BR/><BR/>I am amazed with you both - I know there will still be moments - that is okay. Our angels are blessings and love transends all - even death.<BR/><BR/>With my thoughts & prayers,<BR/>Elizabeth<BR/><BR/>PS - I can't wait to see the pictures and video...Elizabethhttps://www.blogger.com/profile/16490413342578432553noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-66227591606079920352008-11-14T17:59:00.000-05:002008-11-14T17:59:00.000-05:00Heather and Matt, please accept my sincere condole...Heather and Matt, please accept my sincere condolences. Both of you and little Will touched my heart. I know Will is in a happy place. Bless you for sharing your journey with others as it has helped all of us in various ways. You are still in my prayers.weiandlhttps://www.blogger.com/profile/03356042365043261208noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-13334909400433712692008-10-27T09:53:00.000-04:002008-10-27T09:53:00.000-04:00heather and matt,, what truely wonderful souls you...heather and matt,, what truely wonderful souls you guys have. you are truely insprirational people! i cried for a while when i heard of will's passing! he was a beautiful baby and we all know where it came from! prayers continue for you both!casauhttps://www.blogger.com/profile/03651590603207360298noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-37084539731913922008-10-24T15:02:00.000-04:002008-10-24T15:02:00.000-04:00Just thought I'd check on you to see how you&#...Just thought I'd check on you to see how you're doing and to let you know that there is a new CDH blog ring for families affected by Congenital Diaphragmatic Hernia. We would be honored to include William's blog.<BR/><BR/>This is a service to all CDH families to help us keep up with CDH blogs and to support and encourage families that need it. You can view it on our blogger blog at http://cdhsupport.blogspot.com/<BR/><BR/>As you can see, it does not list CHERUBS or any CDH group and it is free to join. You can click on Previous and Next and surf from CDH blog to CDH blog. <BR/><BR/>You can add it to any blog - myspace, blogger, wordpress, live, etc. Make sure to add your CHERUBS site blog to this as well!<BR/><BR/>To join, go here: http://www.ringsworld.com/cdhblogsring/join.html<BR/><BR/>I hope you have a wonderful weekend!<BR/><BR/>Dawn<BR/>President & Founder, CHERUBS<BR/>mom of Shane (1/28/93-9/11/99), LCDH x6, vent 1.5 yrs, oxygen 2 yrs, trach 2 yrs, Mic-Key feeding button, deaf 6 yrs, sight impaired, ASD, pulmonary sequestration, hypospadius, recurrent pneumonia and blood infections, hospitalized off and on his entire life, lost to gastropleural fistula - loved matchbox cars, Sesame Street and books, walked, signed, was a happy little guy!CDHi Adminhttps://www.blogger.com/profile/06168604688370795410noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-44782487673338030422008-10-02T00:08:00.000-04:002008-10-02T00:08:00.000-04:00Heather and Matt:Just wanted to let you know I was...Heather and Matt:<BR/>Just wanted to let you know I was thinking about you both and praying for your continued strength and encouragement to others. Your lights are shining so brightly at the "top of the hill" for so many to see. <BR/>RachelAnonymoushttps://www.blogger.com/profile/16987937416406586866noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-23620521682653558222008-09-23T15:14:00.000-04:002008-09-23T15:14:00.000-04:00Heather and Matt,Your family continues to be in ou...Heather and Matt,<BR/><BR/>Your family continues to be in our thoughts and prayers. <BR/><BR/>We are here if you need us!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-21019555090078673382008-09-14T16:17:00.000-04:002008-09-14T16:17:00.000-04:00Our dearest Matthew and Heather,We hopeit maycomfo...Our dearest Matthew and Heather,<BR/><BR/>We hopeit maycomfort you this Sunday morning to know that 100 people attended a Mass dedicated to William's memory and to uplift and to express their condolences on his loss.<BR/><BR/>William has touched the hearts of people around the world, more than most people do in their entire life time.<BR/><BR/>We love and cherish you both and will send the program to you. Breathe of hope sent the bracelets and pins for the beautiful service and the music - organ and soprano - were magnificent.<BR/><BR/>All our love,<BR/><BR/>Grandma and Grandpa MorganGrandmahttps://www.blogger.com/profile/13339447980819663658noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-52523268376507423932008-09-13T00:14:00.000-04:002008-09-13T00:14:00.000-04:00Heather and Matt,Your family continues to be in ou...Heather and Matt,<BR/>Your family continues to be in our prayers. Just thinking of precious Will today and wanted to send you a note.<BR/>LizLiz Richhttps://www.blogger.com/profile/03928689342850690174noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-18125880508097425932008-09-12T00:16:00.000-04:002008-09-12T00:16:00.000-04:00Heather and Matt- We have not been able to find t...Heather and Matt-<BR/> We have not been able to find the words to write you over the past couple days. I remember that night that Brian checked your blog page and found out that Will had passed after such a short time here on earth. Both Brian and I wept like he was our own. We could not imagine how the two of you could possibly cope with loosing Will, but we now understand. Your strenght and attitudes were such an inspiration to the both of us, and we have strived to be as strong as the two of you in our time of grief.<BR/><BR/>Your continued support for Elli's fight was such an amazing inspiration to Brian and I. We are so lucky to have been in contact with you through the CDH community, and just want you to know that your comments helped during those long hours in the NICU. Your abilbity to support us and root for us showed just how selfless you two truly are. Will was so lucky to have an amazing set of parents. <BR/><BR/>It is still so hard to believe that our precious Angles shared a birthday and are now enjoying eachother in Heaven. I am not sure if it was an unlucky day or if God knew that they would need someone to keep them company in heaven until their mommies could be there to join them. Either way, we are so lucky to have shared in our joruney's. Although we miss our babies everyday, I still hold out hope for the next babies born with this terrible defect. <BR/><BR/>Thank you again for all your thoughts and prayers and we will continue to think of you and your family. Continued prayers for strenght, faith and hope. <BR/><BR/>Brian Cassi and Angel ElliBrian and Cassi Reedhttps://www.blogger.com/profile/03095618401843225235noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-38488103070382809252008-09-08T14:55:00.000-04:002008-09-08T14:55:00.000-04:00Matt & Heather - I am so sorry for your loss a...Matt & Heather - I am so sorry for your loss and my heart goes out to you both. Will was a beautiful little boy and I'm glad you were able to spend a little time with him. Thank you for your strength and for sharing this experience with everyone.valerie weagerhttps://www.blogger.com/profile/00902820875000864324noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-80277936141874477362008-09-04T11:36:00.000-04:002008-09-04T11:36:00.000-04:00Heather and Matt, Words cannot express how saddene...Heather and Matt, <BR/>Words cannot express how saddened we are to hear about your baby William. He was an absolutely precious little baby boy and will always be that in everyone's hearts. I'm coming late into this blog, but I've read enough to know that your courage and strength throughout this entire journey has been steadfast and is inspirational. Thank you for enlightening us about this medical condition and sharing your experiences. Take care of yourselves and know that we are thinking and praying for your family during this difficult time.<BR/>God Bless, <BR/>Sara and Daren Zywicki (former New Haven neighbors)Sara and Daren Zywickihttps://www.blogger.com/profile/09664938502342488931noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-14990548589874157332008-09-02T15:04:00.000-04:002008-09-02T15:04:00.000-04:00Heather and Matt,Matthew and I are with you today ...Heather and Matt,<BR/><BR/>Matthew and I are with you today heart and soul even if we cannot be there in person. We know only too well how it feels to lose a baby. You two are so strong, you never wavered in your focus on hope. You and your precious William fought a good fight and all of you are heroes for weathering this storm. I know this may be hard to believe right now but someday this pain will be bearable and your precious memories of William will bring only smiles without the tears. Be kind to yourselves in this very raw time and allow yourselves and each other the time you need to grieve. Lean on those who are here to support you. We have lost and come out the other side to find happiness again...if you EVER just need someone to listen on a bad day please feel free to call anytime. 404-502-5501 is my cell phone. Friends will be the angels who give you wings on the days you might feel you have forgotten how to fly. Love and healing thoughts to you. Your William Ethan was as beautiful as his name.... xxooo Kelly and Matthew NelsonKelly and Matthew Nelsonhttps://www.blogger.com/profile/07446034703142014511noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-2933962736797152672008-09-02T15:03:00.000-04:002008-09-02T15:03:00.000-04:00Heather and Matt,Matthew and I are with you today ...Heather and Matt,<BR/><BR/>Matthew and I are with you today heart and soul even if we cannot be there in person. We know only too well how it feels to lose a baby. You two are so strong, you never wavered in your focus on hope. You and your precious William fought a good fight and all of you are heroes for weathering this storm. I know this may be hard to believe right now but someday this pain will be bearable and your precious memories of William will bring only smiles without the tears. Be kind to yourselves in this very raw time and allow yourselves and each other the time you need to grieve. Lean on those who are here to support you. We have lost and come out the other side to find happiness again...if you EVER just need someone to listen on a bad day please feel free to call anytime. 404-502-5501 is my cell phone. Friends will be the angels who give you wings on the days you might feel you have forgotten how to fly. Love and healing thoughts to you. Your William Ethan was as beautiful as his name.... xxooo Kelly and Matthew NelsonKelly and Matthew Nelsonhttps://www.blogger.com/profile/07446034703142014511noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-76524810842330169752008-08-29T11:30:00.000-04:002008-08-29T11:30:00.000-04:00I am a friend of grandmother Argiro from Louisiana...I am a friend of grandmother Argiro from Louisiana...<BR/>I am so sorry for your loss.<BR/>He was a beautiful boy.<BR/>Your family is in my prayers.<BR/>Martha LaqueMattiehttps://www.blogger.com/profile/05580590115935483735noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-73990662567429379952008-08-28T23:17:00.000-04:002008-08-28T23:17:00.000-04:00From darkness comes a great light. William's ligh...From darkness comes a great light. William's light will shine like the star of Bethlehem and eventually will lead to the discovery of the cause of CDH and the health and lives of other newborns.Grandmahttps://www.blogger.com/profile/13339447980819663658noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-9171238391874964432008-08-28T20:20:00.000-04:002008-08-28T20:20:00.000-04:00I am so sorry for the loss of your precious son. H...I am so sorry for the loss of your precious son. He is so beautiful, and you are right, I can see God in his eyes. Please know you are in my prayers. I am a great-aunt to baby Elli Reed who also was born August 19th with CDH and wait anxiously she is having surgery this afternoon. <BR/>I hope you can find some comfort knowing there are others out there holding you in our hearts.<BR/><BR/>With love and sympathy,<BR/>Nancy LewisNancy Lhttps://www.blogger.com/profile/16967096237932392737noreply@blogger.comtag:blogger.com,1999:blog-3345764855422839411.post-60762127119248012562008-08-28T10:47:00.000-04:002008-08-28T10:47:00.000-04:00We are so sorry for your loss. We write this with ...We are so sorry for your loss. We write this with a very heavy heart. Our thoughts and prayers are with you both and with Baby Will. <BR/><BR/>Love, the Rosario'sKRhttps://www.blogger.com/profile/01392911319232723238noreply@blogger.com